[36F] Experiencing joint pain, cognitive dysfunction, and palpitations

What might be happening

Based on the symptoms you've described and your medical history, here are some possible explanations:

1. Fibromyalgia: This condition is characterized by widespread musculoskeletal pain, fatigue, sleep disturbances, and cognitive difficulties, often referred to as "fibro fog." The joint and muscle pain, fatigue, disturbed sleep, and cognitive issues you mentioned could be related to fibromyalgia. It's a chronic condition that can be managed with a combination of medications, lifestyle changes, and therapies.

2. Ehlers-Danlos Syndrome (EDS): Given your history of hypermobility and frequent joint dislocations, EDS could be a possibility. This group of disorders affects connective tissues, leading to symptoms like joint pain, skin sensitivity, and fatigue. The sharp chest pain and palpitations might also be related to EDS, as it can affect the cardiovascular system.

3. Chronic Fatigue Syndrome (CFS): This condition is characterized by extreme fatigue that doesn't improve with rest and may worsen with physical or mental activity. It can also cause muscle and joint pain, headaches, and cognitive difficulties.

4. POTS (Postural Orthostatic Tachycardia Syndrome): This condition affects circulation (blood flow) and can cause symptoms like palpitations, dizziness, and fatigue, especially when standing up.

It's important to consult with a healthcare professional for a proper diagnosis and treatment plan. They may recommend further testing or refer you to a specialist to better understand your symptoms and provide appropriate care.

What you can do

Joint and Muscle Pain:

• Continue taking NSAIDs as needed for pain relief, but be mindful of the recommended dosage.
• Consider gentle stretching exercises and low-impact activities like swimming or yoga to help maintain joint flexibility and reduce stiffness.
• Apply heat or cold packs to painful areas to help alleviate discomfort.

Fatigue and Cognitive Dysfunction:

• Prioritize good sleep hygiene by maintaining a regular sleep schedule and creating a restful sleep environment.
• Break tasks into smaller, manageable steps and take regular breaks to avoid overexertion.
• Use tools like planners or digital reminders to help with memory and organization.

Palpitations and Chest Pain:

• Continue taking propranolol as prescribed to help manage your heart rate.
• Practice relaxation techniques such as deep breathing or meditation to help reduce stress and anxiety, which can exacerbate palpitations.

Leg Edema:

• Elevate your legs when sitting or lying down to help reduce swelling.
• Wear compression stockings to improve circulation and reduce edema.

General Health:

• Maintain a balanced diet rich in fruits, vegetables, whole grains, and lean proteins to support overall health.
• Stay hydrated and avoid excessive caffeine or alcohol consumption.

Consider using MDandMe to journal your symptoms, track progress, get insights, and share longitudinal medical notes with your provider.

What you should look out for

While you're experiencing these symptoms, it's important to be aware of certain red flags that could indicate a medical emergency. If you notice any of the following, seek urgent medical attention:

• Severe chest pain that lasts longer than a few minutes or is accompanied by shortness of breath, sweating, or nausea.
• Sudden shortness of breath or difficulty breathing.
• Fainting or loss of consciousness, especially with palpitations or chest pain.
• A sudden, severe headache, often described as the "worst headache of your life."
• Significant swelling, redness, or pain in one leg, which could indicate a deep vein thrombosis (DVT).

If you experience any of these red flags, please seek emergency medical care right away. If you have any questions or need further guidance, feel free to ask!