[22F] Experiencing unexplained seizures and gastrointestinal symptoms

What might be happening

Based on the symptoms you've described, here are some possibilities:

1. Seizure Disorder: Your history of seizures, especially those occurring randomly and during sleep, suggests a possible seizure disorder. Seizures can sometimes occur without a clear trigger and may be related to electrical activity in the brain. It's important to continue working with a neurologist to explore this possibility further.

2. Gastroesophageal Reflux Disease (GERD): The pain you experience when swallowing, along with nausea and vomiting, could be related to GERD. This condition occurs when stomach acid frequently flows back into the tube connecting your mouth and stomach, causing irritation.

3. Hypoglycemia: Your symptoms of lightheadedness, nausea, and tiredness could be related to low blood sugar levels, especially given your history of borderline diabetes. It's important to monitor your blood sugar levels and discuss this with your healthcare provider.

4. Autonomic Dysfunction: This involves the part of the nervous system that controls involuntary actions, like heart rate and digestion. It could explain symptoms like sweating, lightheadedness, and nausea.

5. Adrenal Insufficiency: This condition occurs when the adrenal glands don't produce enough hormones. It can cause symptoms like fatigue, nausea, and low blood pressure, which might contribute to lightheadedness.

6. Food Intolerances or Allergies: Sometimes, food intolerances or allergies can cause gastrointestinal symptoms like painful swallowing and nausea. It might be worth exploring if certain foods trigger your symptoms.

7. Psychogenic Non-Epileptic Seizures (PNES): These are episodes that resemble seizures but are not caused by electrical disruptions in the brain. They can be related to psychological factors.

While these are some possibilities, it's crucial to continue working with your healthcare team to identify the underlying cause of your symptoms. If your symptoms worsen or you experience new symptoms, please seek medical attention promptly.

What you can do

Seizures:

• Continue to work closely with your neurologist to explore potential causes and treatment options.
• Keep a detailed journal of your symptoms, including the frequency and duration of seizures, using MDandMe. This information can be valuable for your healthcare provider.
• Ensure a safe environment to minimize the risk of injury during a seizure. Avoid activities like driving until your seizures are better controlled.

Painful Swallowing and Nausea:

• Consider dietary modifications, such as eating smaller, more frequent meals and avoiding foods that trigger symptoms.
• Elevate the head of your bed to reduce nighttime symptoms if GERD is suspected.
• Discuss with your healthcare provider the possibility of medications to manage GERD or other gastrointestinal issues.

Lightheadedness and Tiredness:

• Monitor your blood sugar levels regularly, especially given your history of borderline diabetes.
• Stay hydrated and maintain a balanced diet to support overall health.
• Consider wearing a medical alert bracelet if you experience frequent episodes of lightheadedness or seizures.

Sweating:

• Dress in lightweight, breathable clothing and stay in a cool environment to manage excessive sweating.
• Discuss with your healthcare provider the possibility of underlying conditions contributing to this symptom.

What you should look out for

Given the complexity of your symptoms, it's important to seek medical care if you experience:

• An increase in the frequency or severity of seizures
• New or worsening symptoms, such as confusion, memory loss, or changes in vision
• Difficulty breathing or chest pain
• Severe abdominal pain or persistent vomiting

Remember, while I can provide information and suggestions, it's essential to consult with healthcare professionals for a formal diagnosis and treatment plan.