[30F] With chronic neurological and visual symptoms

What might be happening

Based on the information you've provided, several potential conditions could be contributing to your symptoms:

1. Intracranial Hypertension (Pseudotumor Cerebri):

   • This condition can cause symptoms like headaches, vision changes, dizziness, and fatigue. Even though your spinal taps have not shown pressure buildup, the condition can still cause significant symptoms.
   • Treatment often involves medications like Acetazolamide, which you are already taking, and sometimes surgical interventions like the transverse sinus stent you had placed.

2. Migraine with Aura:

   • Your history of aura migraines and headaches suggests that migraines could be contributing to your vision changes, dizziness, and light sensitivity.
   • Treatment typically includes medications to prevent migraines and relieve symptoms when they occur.

3. Anxiety and Depression:

   • Chronic anxiety and depression can lead to symptoms like fatigue, brain fog, dizziness, and a sense of depersonalization or derealization.
   • Treatment often involves a combination of medication, therapy, and lifestyle changes.

4. Chronic Fatigue Syndrome (CFS):

   • This condition is characterized by extreme fatigue that doesn't improve with rest and can be accompanied by brain fog, dizziness, and other symptoms.
   • Treatment focuses on symptom management, including medications, therapy, and lifestyle changes.

5. Medication Side Effects:

   • Some of your symptoms could be side effects of the medications you are taking, such as Acetazolamide.
   • Discussing your symptoms with your doctor can help determine if your medications need to be adjusted.

What you can do

1. Follow Up with Your Doctor:

   • Given the complexity of your symptoms and your existing medical conditions, it's important to continue working with your healthcare providers to find the best treatment plan.
   • Consider discussing the possibility of Chronic Fatigue Syndrome or other conditions that might explain your symptoms.

2. Manage Stress and Anxiety:

   • Techniques like mindfulness, meditation, and breathing exercises can help manage anxiety and stress.
   • Cognitive-behavioral therapy (CBT) is also effective for managing anxiety and depression.

3. Lifestyle Adjustments:

   • Try to incorporate gentle physical activity into your routine, such as walking or stretching, to improve your overall well-being.
   • Ensure you are getting adequate sleep and maintaining a balanced diet.

4. Monitor Symptoms:

   • Keep a symptom diary to track what triggers or worsens your symptoms. This can provide valuable information for your healthcare providers.

What you should look out for

Seek medical attention if you experience any of the following:

• Sudden, severe headaches or changes in vision.
• New or worsening neurological symptoms, such as weakness or numbness.
• Severe dizziness or vertigo that affects your ability to function.
• Any new or concerning symptoms that you haven't experienced before.

Remember, while I can provide information based on your symptoms, it's important to consult with a healthcare professional for a formal diagnosis and treatment plan.