[38M] Experiencing neurological and cognitive symptoms with a history of sick sinus syndrome and pacemaker

What might be happening

Based on the symptoms you've described, there are a few potential diagnoses to consider:

1. Migraine with Aura: Migraines can cause severe headaches, vision changes, dizziness, and cognitive difficulties. The sensation of your brain feeling like it's having small muscle contractions could be related to the neurological disturbances that occur during a migraine.

2. Transient Ischemic Attack (TIA): Given your history of sick sinus syndrome and the presence of a pacemaker, it's important to consider the possibility of a TIA, which is a temporary period of symptoms similar to those of a stroke. Symptoms can include dizziness, vision changes, memory issues, and weakness.

3. Cervical Spine Issues: Your history of a double fusion in your neck could be contributing to some of your symptoms, especially if there is any nerve compression or other complications from the surgery.

4. Neurological Disorders: Conditions such as multiple sclerosis or other neurological disorders could potentially explain the wide range of symptoms you're experiencing, including cognitive changes, dizziness, and weakness.

What you can do

Migraine with Aura:

• Consult a Neurologist: It's important to see a neurologist who can evaluate your symptoms and possibly perform imaging studies like an MRI to rule out other causes.
• Medication: There are medications available that can help prevent migraines or reduce their severity. Your doctor can prescribe these based on your specific needs.
• Lifestyle Changes: Keeping a migraine diary to track triggers, maintaining a regular sleep schedule, staying hydrated, and managing stress can help reduce the frequency and severity of migraines.

Transient Ischemic Attack (TIA):

• Immediate Medical Attention: If you suspect a TIA, seek immediate medical attention. TIAs are often warning signs of a potential future stroke.
• Follow-Up Care: Your doctor may recommend lifestyle changes, medications to reduce stroke risk, and possibly further cardiovascular evaluations.

Cervical Spine Issues:

• Physical Therapy: A physical therapist can help you with exercises to strengthen your neck and improve your posture, which may alleviate some of your symptoms.
• Follow-Up with Your Surgeon: If you haven't already, consider following up with the surgeon who performed your neck fusion to ensure there are no complications.

Neurological Disorders:

• Neurological Evaluation: A comprehensive evaluation by a neurologist can help determine if there is an underlying neurological condition contributing to your symptoms.
• Diagnostic Tests: Tests such as MRI, CT scans, or lumbar punctures may be necessary to diagnose or rule out certain conditions.

What you should look out for

Given the severity and complexity of your symptoms, it's important to seek medical care as soon as possible. Reasons to seek care even more urgently include:

• Sudden onset of severe headache or vision changes
• Sudden weakness or numbness, especially on one side of the body
• Difficulty speaking or understanding speech
• Loss of coordination or balance
• Fainting or loss of consciousness

Remember, while I can provide information and suggestions, it's crucial to consult with a healthcare professional for a formal diagnosis and appropriate treatment. You can also use MDandMe to journal your symptoms, track progress, get insights, and share longitudinal medical notes with your provider.