[4F] With seizures, eye and throat pain, and elevated alkaline phosphatase

What might be happening

It sounds like there are several symptoms and conditions affecting your child, which may be related to multiple underlying issues:

1. Eye Pain and Pressure: This could be a side effect of Tryliptel, especially since it started after the medication was introduced. It's important to discuss this with your doctor, as they may need to adjust the dosage or try a different medication.

2. Throat Pain and Swollen Lymph Nodes: This might be related to the recent tonsillectomy. Post-surgical inflammation or infection could cause these symptoms. Monitoring for any signs of infection, such as fever, is important.

3. Seizures: The left frontal lobe seizures, especially occurring at night, are concerning and need ongoing management by a neurologist. The EEG results showing multiple seizures indicate that the current treatment plan may need adjustment.

4. Elevated Alkaline Phosphate and Liver Function Tests: These could indicate liver stress or other metabolic issues. It's important to follow up with your healthcare provider for further evaluation.

5. Fatigue and Loss of Appetite: These symptoms could be related to the medication, seizures, or another underlying condition. They may also be contributing to the weight fluctuations.

What you can do

Eye Pain and Throat Pain:

• Continue to monitor these symptoms and report any changes to your healthcare provider.
• Ensure your child stays hydrated and consider using a humidifier to ease throat discomfort.

Seizures:

• Keep a detailed log of seizure activity, including frequency and duration, to share with your neurologist.
• Ensure a safe environment to prevent injury during seizures.

Elevated Liver Tests:

• Follow up with your healthcare provider for further testing and evaluation.
• Avoid any medications or substances that could further stress the liver.

Fatigue and Appetite:

• Encourage small, frequent meals to help with appetite.
• Ensure your child gets adequate rest and a consistent sleep schedule.

What you should look out for

• Any signs of infection, such as fever or increased swelling.
• Worsening of seizures or any new neurological symptoms.
• Significant changes in behavior or mood.
• Any new or worsening symptoms should prompt a visit to your healthcare provider.

Remember, it's important to work closely with your healthcare team to address these complex symptoms. Using MDandMe to journal symptoms and track progress can be helpful in managing your child's health.