[38F] Experiencing severe headaches and altered smell with a history of thyroid cancer

Patient Description

A 38-year-old female presents with severe, sharp headaches located at the front of the head, rated as 10 out of 10 in intensity. These headaches occur every few days, come on suddenly, and are accompanied by visual disturbances. The patient also reports an altered sense of smell, specifically smelling ethanol gas when others do not, which seems to improve with bowel movements. Additional symptoms include dizziness and confusion, occurring on and off for a couple of months. The patient's medical history includes thyroid cancer diagnosed in 2015, tumors on thyroid scar tissue, colitis, lung disease, bowel dysfunctions, back pain, mood swings, irritability, and bone density issues. The patient has been on Depo Provera for approximately 13 years, affecting the menstrual cycle. Current medications include Alprazolam (1 mg four times a day as needed), Gabapentin (600 mg three times a day), and Levothyroxine (150 mcg). There are no known allergies. Weight fluctuations have been noted, and recent thyroid function tests indicated very high TSH levels.

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Arora's Assessment

What might be happening

Based on the symptoms and medical history you've shared, there are a few potential explanations for what you might be experiencing:

  1. Thyroid Dysfunction: Your very high TSH levels suggest that your thyroid hormone levels might be low, which can lead to symptoms like headaches, dizziness, confusion, and changes in weight. It's important to follow up with your healthcare provider to adjust your thyroid medication as needed.

  2. Migraine with Aura: The sharp headaches at the front of your head, along with visual disturbances, could be indicative of migraines with aura. Migraines can be triggered by hormonal changes, stress, or other factors.

  3. Phantosmia (Olfactory Hallucinations): The sensation of smelling ethanol gas when others do not could be a condition known as phantosmia. This can sometimes occur with migraines or other neurological conditions.

  4. Spinal Issues: Your degenerative disc disease and spinal issues could contribute to headaches and dizziness, especially if there is nerve compression.

  5. Medication Side Effects: Some of your symptoms, such as dizziness and confusion, could be side effects of medications like Gabapentin or Alprazolam.

What you can do

Thyroid Dysfunction:

  • Follow up with your healthcare provider to discuss your recent thyroid function test results and adjust your Levothyroxine dosage if necessary.
  • Keep track of any symptoms related to thyroid dysfunction using the MDandMe journal.

Headaches and Migraines:

  • Consider keeping a headache diary to identify potential triggers and patterns.
  • Discuss with your doctor the possibility of migraine treatment options, which may include medications or lifestyle changes.

Phantosmia:

  • If the phantom smells persist or worsen, consult with a healthcare provider for further evaluation.

Spinal Issues:

  • Engage in gentle exercises or physical therapy as recommended by your healthcare provider to manage spinal pain.
  • Apply heat or cold packs to the affected area for temporary relief.

General Health:

  • Ensure you are getting adequate rest, hydration, and nutrition.
  • Use MDandMe to track your symptoms and share this information with your healthcare provider.

What you should look out for

Given the complexity of your symptoms and medical history, it's important to seek medical care if you experience:

  • Worsening headaches or new neurological symptoms
  • Significant changes in vision or persistent visual disturbances
  • Severe dizziness or fainting
  • Any new or concerning symptoms related to your thyroid or other conditions

Please remember that this information is not a substitute for professional medical advice. It's important to consult with your healthcare provider for a formal diagnosis and appropriate treatment.

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6 mo ago

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People Also Ask


What could be causing my severe, sharp headaches with visual disturbances?

Your severe, sharp headaches with visual disturbances could be migraines with aura. Migraines can be triggered by hormonal changes, stress, or other factors. It's important to discuss these symptoms with your healthcare provider for proper diagnosis and treatment.


Why am I experiencing an altered sense of smell, like smelling ethanol gas?

The sensation of smelling ethanol gas when others do not could be a condition known as phantosmia, or olfactory hallucinations. This can sometimes occur with migraines or other neurological conditions. If the phantom smells persist, consult with a healthcare provider for further evaluation.


How can high TSH levels affect my health and symptoms?

High TSH levels suggest that your thyroid hormone levels might be low, which can lead to symptoms like headaches, dizziness, confusion, and changes in weight. It's important to follow up with your healthcare provider to adjust your thyroid medication as needed.


Could my medications be contributing to my dizziness and confusion?

Yes, some of your symptoms, such as dizziness and confusion, could be side effects of medications like Gabapentin or Alprazolam. It's important to discuss these side effects with your healthcare provider to determine if adjustments to your medication regimen are necessary.


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