[22F] Experiencing severe positional headaches with nausea and photophobia

What might be happening

Based on the symptoms you've described, here are some possible explanations:

• Orthostatic Headaches: These headaches occur or worsen when you stand up and improve when you lie down. They can be associated with changes in cerebrospinal fluid (CSF) pressure, sometimes due to a CSF leak. This could explain the intense pressure and dizziness you feel upon standing.

  • Treatment: Treatment often involves addressing the underlying cause, such as a CSF leak, which may require medical intervention. A healthcare provider might recommend imaging tests to confirm this diagnosis.

• Migraine with Aura: Migraines can cause severe headaches, sensitivity to light and sound, nausea, and visual disturbances like blurry vision or temporary vision loss. The ringing in your ears and dizziness could also be related to migraines.

  • Treatment: Migraine management often includes medications to relieve symptoms and prevent future attacks. Lifestyle changes, such as regular sleep patterns and stress management, can also help.

• Postural Orthostatic Tachycardia Syndrome (POTS): This condition involves an abnormal increase in heart rate when standing up, which can cause dizziness, headaches, and other symptoms.

  • Treatment: Treatment may include lifestyle changes, such as increasing fluid and salt intake, wearing compression garments, and medications to manage symptoms.

What you can do

1. Consult a Healthcare Provider: It's important to see a doctor for a formal diagnosis and appropriate treatment. They may recommend tests like an MRI or CT scan to investigate further.

2. Symptom Tracking: Use MDandMe to journal your symptoms, track their frequency and intensity, and note any potential triggers. This information can be valuable for your healthcare provider.

3. Stay Hydrated: Ensure you're drinking enough fluids throughout the day, as dehydration can exacerbate headaches.

4. Manage Caffeine Intake: While caffeine can sometimes help with headaches, it can also be a trigger for some people. Monitor your intake and see if adjustments make a difference.

5. Rest and Relaxation: When you feel a headache coming on, try to rest in a dark, quiet room to minimize symptoms.

What you should look out for

Seek medical attention if you experience:

• Sudden, severe headaches that are different from your usual pattern
• Neurological symptoms like weakness, numbness, or difficulty speaking
• Persistent or worsening symptoms despite self-care measures

Remember, while this information can be helpful, it's important to consult with a healthcare professional for a proper diagnosis and treatment plan.